Hudson Freeze, Director of the Human Genetics Program, Sanford Burnham Prebys Medical Discovery Institute
Diana Papworth, Mother of Children with CDG
Shaun Papworth, CDG Patient
With Steve Clemons,The Atlantic
About this conference
The Atlantic will convene experts for a discussion of the rare disease patient experience and why it is so unique. We will probe these themes through conversations seeking to explore how genomics and other cutting-edge clinical innovations may transform the future of health care.
About The Atlantic
Since 1857, The Atlantic has helped shape the national debate on the most critical and contentious issues of our times, from politics, business, and the economy, to technology, arts, and culture. Through in-depth analysis in the monthly print magazine, complemented by up-to-the-minute insights delivered throughout the day on theatlantic.com, The Atlantic provides the nation’s thought leaders and professional class with forward-looking, fresh perspectives that provoke and challenge, define and affect the lives we’re living today, and give shape to the lives we will live tomorrow.