Accelerating the Conversation: Rare Disease, the Patient Experience and What's Next

February 14, 2017
6:30 am - 7:30 am PST


Tuesday, February 14

6:30 am PST Welcome to Accelerating the Conversation     Watch On-Demand
  • Jocelyn Miller, AtlanticLIVE
  • Tolga Tanguler, President of North America, Pfizer Rare Disease
6:40 am PST Looking for a Cure: The Rare Disease Patient Experience and Lysosomal Storage Disease     Watch On-Demand
  • Cara O'Neill, Co-founder and Vice President, Cure Sanfilippo Foundation
  • Elsa Shapiro, Professor of Pediatrics and Neurology, Division of Pediatric Behavioral Neuroscience, University of Minnesota
  • With Steve Clemons, Washington Editor at Large, The Atlantic
7:05 am PST When There's No Diagnosis: One Rare Disease Researcher's Hunt for Answers     Watch On-Demand
  • Hudson Freeze, Director of the Human Genetics Program, Sanford Burnham Prebys Medical Discovery Institute
  • Diana Papworth, Mother of Children with CDG
  • Shaun Papworth, CDG Patient
  • With Steve Clemons,The Atlantic

About this conference

The Atlantic will convene experts for a discussion of the rare disease patient experience and why it is so unique. We will probe these themes through conversations seeking to explore how genomics and other cutting-edge clinical innovations may transform the future of health care.

About The Atlantic

Since 1857, The Atlantic has helped shape the national debate on the most critical and contentious issues of our times, from politics, business, and the economy, to technology, arts, and culture. Through in-depth analysis in the monthly print magazine, complemented by up-to-the-minute insights delivered throughout the day on, The Atlantic provides the nation’s thought leaders and professional class with forward-looking, fresh perspectives that provoke and challenge, define and affect the lives we’re living today, and give shape to the lives we will live tomorrow.

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