Over lunch we will hear from the project leaders on how they envisage the Commons approach working to help their project and their next steps.
Margaret Anderson is executive director of FasterCures, a nonprofit think tank, catalyst for action and center of the Milken Institute that works across sectors to improve the medical research enterprise. Anderson defines FasterCuresâ€™ strategic priorities, develops its programmatic portfolio, and manages its operations. Before her appointment, she was FasterCures' chief operating officer for five years. Previously Anderson was deputy director at the Center on AIDS and Community Health at the Academy for Educational Development where she managed programs funded by the Ford Foundation, the Annie E. Casey Foundation and the Centers for Disease Control and Prevention; program director at the Society for Women's Health Research where she focused on gender differences in research; a Health Sciences Analyst at the American Public Health Association where she focused on infectious diseases; and project director and analyst in the Biological Applications Program at the Congressional Office of Technology Assessment. She serves as incoming president of the Alliance for a Stronger FDA, is a board member of the Council for American Medical Innovation and the Coalition for the Advancement of Medical Research, co-chairs the e-health Initiativeâ€™s Council on Data and Research, and is involved in numerous health and science policy coalitions and committees. She received a master's degree in science, technology and public policy from George Washington University's Elliott School of International Affairs.
Myles Axton has a degree in genetics from Cambridge University and got his Ph.D. from Imperial College, London in David M. Glover's cell cycle genetics research group. He continued with postdoctoral research at the University of Dundee, and then moved to the Whitehead Institute for Biomedical Research to study DNA replication in Drosophila development with Terry L. Orr-Weaver. From 1995 to 2003 he was a University Lecturer in Molecular and Cellular Biology at the University of Oxford and a Tutorial Fellow of Balliol College. He joined Nature Genetics in 2003.
Jason Bobe is the founding Executive Director of PersonalGenomes.org and has served as the Director of Community for the Harvard Personal Genome Project since 2007. Jason is also curator and executive producer of the annual Genomes, Environments and Traits Conference. He was an invited speaker to the Presidential Commission for the Study of Bioethical Issues and is a regular commentator on the importance of citizen science, decentralized access to genomic technologies and DIYbio. Twitter: @jasonbobe
Chief of the Structural Biology and Molecular Application Branch, Division of Cancer Biology
Sarah Greene is Executive Director of Cancer Commons, a nonprofit whose mission is to advance and report the latest precision therapies to patients through Rapid Learning Communities involving patients, researchers and physicians. Most recently she was editor-in-chief of The Scientist magazine and its parent, Faculty of 1000, a post-publication peer review service in London. She is a publishing and new media entrepreneur with three startups acquired by Wiley (Current Protocols), Elsevier (HMS Beagle web magazine and BioMedNet), and Thomson Reuters (Praxis.MD; Best Practice of Medicine). She was a co-founder of the Society for Participatory Medicine and launched the Journal of Participatory Medicine as managing editor. Greene also developed websites with original content and formats for the New York Academy of Sciences (eBriefings, Science & the City) and The New York Times-Health, and was chief content officer at Keas, Inc. She trained as a soil microbiologist and puts this to good use at her family farm in Nebraska.
Magali Haas earned her Bachelor of Science in bioengineering from the University of Pennsylvania, a Master of Science in biomedical engineering degree from Rutgers University, New Jersey, and her medical degree and doctorate in neuroscience from Albert Einstein College of Medicine, New York, under the National Institutes of Health Medical Scientist Training Program. She received the Julius Marmur Research Award from Albert Einstein College of Medicine, in 1997. Dr. Haas joined the Johnson & Johnson organization in 2001 and has gained extensive end-to-end development experience across the various leadership roles she has assumed in medical marketing, full clinical development, early development, translational and biomarker sciences in Psychiatry and Neurology. She oversaw the filing and approval of an antipsychotic for pediatric indications in autism, schizophrenia, and bipolar disorder as well as the clinical Phase 2/3 programs for a novel anticonvulsant drug in epilepsy, migraine and neuropathic pain. She has published over 20 peer-reviewed articles, holds several patents and authored a recent Chapter on Pediatric Trial Methodology. She currently Heads the Department of Integrative Solutions which develops Stratified Medicine strategies and Companion Diagnostics & Solutions for AD, Mood, Schizophrenia and Pain.
Peter Kapitein is President and patient advocate of inspire2live.
Geneticist and founder of the Rare Genomics Institute, an organization that allows patients to crowdsource funds and genomes to accelerate research of their rare genetic diseases. Jimmy is the lead computational biologist for the ground-breaking cancer genome sequencing efforts from the Vogelstein Lab at Johns Hopkins. Their sequencing of the first 100+ cancer exomes in 5 different tissue types has helped lay the foundation for a revolution in cancer genomics. After completing his MD/PhD at Johns Hopkins, along with colleagues at Harvard and Yale, Jimmy started Rare Genomics Institute: a non-profit biotech venture that microfunds and enables genome sequencing for children with rare and orphan diseases.
Susan Love: Physician and cofounder of the National Breast Cancer Coalition and the Dr. Susan Love Research Foundation.
Alexander Pico, Ph.D., is Chief Science Officer at Alitora Systems.
Dr. Pico holds a PhD in Molecular Neurobiology and Biophysics and has over 10 years of bioinformatics experience in data mining, analysis, visualization and integration. Over the past 5 years he has led the GenMAPP pathway analysis project, managing software development and coordinating research projects involving wet lab biologists and senior programmers. Dr. Pico is a member of the Cytoscape core development team, a creator of SNPLogic.org, and a founder of WikiPathways.org. He has also administered GenMAPP's participation in the Google Summer of Code program for the last 3 consecutive years. Dr. Pico also works with the Gladstone Institutes in San Francisco as a Bioinformatics Software Engineer.
Robert Plenge is a clinical rheumatologist and human geneticist at Harvard Medical School. Robert's research interest is to translate genetic discoveries to care of patients with common autoimmune diseases such as rheumatoid arthritis (RA) and systemic lupus erythematosus (SLE).
Vicki L. Seyfert-Margolis
Vicki Seyfert-Margolis, Ph.D., serves as the Senior Science Advisor to the FDA's Chief Scientist in the mission of upgrading science, with a focus on bioinformatics and advancing regulatory science. She has most recently been Chief Scientific Officer at Immune Tolerance Network, a non-profit consortium of researchers seeking new treatments for diseases of the immune system; and an Adjunct Associate Professor with the Department of Medicine at the University of California - San Francisco.
Prior to that, Seyfert-Margolis was a program director in innovative scientific research at the National Institute of Allergy and Infectious Diseases, National Institutes of Health. Dr. Seyfert-Margolis research interests are: Immunology, biomarker development, advancing scientific computing environment/high density data, health information technology, validation and standards development.
Director of the Cancer Genome Atlas Program Office at the National Cancer Institute
George Vradenburg is Chairman of USAgainstAlzheimer's, which he co-founded in October 2010. He was named by U.S. Health and Human Services Secretary Kathleen Sebelius to serve on the Advisory Council on Research, Care, and Services established by the National Alzheimer's Project Act and has testified before Congress about the global Alzheimer's pandemic. George has been appointed to the bipartisan Commission on Long-Term Care. And he and USAgainstAlzheimer's co-convene both the Leaders Engaged on Alzheimer's Disease (LEAD) Coalition and the Global CEO Initiative on Alzheimer's Disease. George and his wife, Trish, have long been dedicated members of Washington's civic and philanthropic community. George is Chairman of the Board of The Phillips Collection, Trustee of the University of the District of Columbia and a member of the Council on Foreign Relations and The Economic Club of Washington. He has served in senior executive and legal positions at CBS, FOX and AOL/Time Warner. George and Trish published Tikkun Magazine for 10 years (Editor-in-Chief Rabbi Michael Lerner is Trish's brother).